National Epilepsy Plan: Better Diagnosis, Treatment, Research Coordination, and Care
This Act establishes the National Plan for Epilepsy to coordinate federal research, services, and activities related to the prevention, diagnosis, treatment, and cure of epilepsy. Citizens affected by epilepsy and their caregivers can expect improved care coordination, earlier diagnosis, and a greater focus on developing effective therapies and reducing financial burdens. The plan is set to operate until the end of 2035, with progress regularly assessed by a newly established Advisory Council, including patients and experts.
Key points
Establishment of the National Plan for Epilepsy to integrate and coordinate federal efforts in research, diagnosis, and treatment of the condition.
Creation of an Advisory Council on Epilepsy Research, Care, and Services, including federal agency representatives, patients, caregivers, and medical experts.
Requirement for annual assessments of progress and reports to Congress with recommendations to improve care, reduce stigma, and eliminate disparities in access to treatment.
Introduction of mechanisms aimed at improving early diagnosis, care coordination, and reducing the financial impact of the disease on affected families.
Mandate for federal agencies to share epilepsy-related data to enable better monitoring and planning of national efforts.
Expired
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