What is the official ID of this bill?
The official print number for this legislation is S 543.
CCM Act: Boosting Research, Treatment, and Awareness for Cerebral Cavernous Malformations.
This act significantly increases funding and coordination for research into Cerebral Cavernous Malformations (CCM), a rare vascular disease that can cause stroke or death. The goal is to accelerate the development of new drugs and non-surgical treatments, as current options are limited primarily to costly surgery. Citizens will gain better access to specialized care, clinical trials, and early diagnosis through a new network of research centers and public awareness programs.
Key points
Increased Research Funding: NIH will fund the search for drugs, gene therapies, and non-invasive treatments for CCM, offering hope for alternatives to surgery.
National Clinical Center Network: A nationwide network of specialized research and clinical centers will be established to provide better care, including telehealth services, especially for underserved communities.
Faster Drug Development: The FDA will coordinate efforts to qualify biomarkers and clinical outcomes, speeding up the process required to bring new CCM treatments to market.
Status:
Expired
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