Genomic Data Protection Act: Right to Delete DNA Test Results
This Act grants consumers the right to control their genomic data collected by direct-to-consumer DNA testing companies. You can request the deletion of your genomic data and the destruction of your biological sample within 30 days of making the request. Companies must clearly notify you of these rights and disclose the identity of any entity acquiring the company or its data, enhancing your privacy and security.
Key points
You gain the right to request direct-to-consumer genomic testing companies to delete all your genomic data and destroy your biological sample.
Companies must fulfill deletion or destruction requests within 30 days and notify you once completed.
If a DNA testing company is sold, you must receive a notice at least 30 days prior, detailing the buyer and reiterating your deletion rights.
Violations of these rules will be treated as unfair or deceptive acts by the Federal Trade Commission (FTC).
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