Better Medicaid Care for Sickle Cell Disease Patients Demonstration Project.
This Act establishes a 5-year Medicaid demonstration project to significantly improve the quality and accessibility of comprehensive outpatient care for individuals with sickle cell disease (SCD). Citizens with SCD in participating states will benefit from coordinated multi-disciplinary care teams, mental health support, medical transportation, and individualized treatment plans, aiming to reduce emergency room visits. The project focuses particularly on young adults and pregnant women, providing 100% federal funding for treatment costs in selected states.
Key points
Establishes a 5-year demonstration project under Medicaid to provide comprehensive outpatient care for individuals with sickle cell disease in selected states.
Patients gain access to multi-disciplinary care teams, including specialists, care coordinators, mental health services, pain management, and transportation to medical appointments.
The project aims to identify and eliminate barriers to care (e.g., provider shortages, social factors) and improve health equity for this patient population.
Expired
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