Major Medicaid Project to Improve Comprehensive Care for Sickle Cell Disease Patients.
This bill establishes a 5-year federal project under Medicaid to drastically improve specialized outpatient care for individuals living with Sickle Cell Disease (SCD). Participating states will receive 100% federal funding for SCD treatment costs, allowing them to build multi-disciplinary care teams, expand access to crucial services like mental health and transportation, and develop personalized treatment plans. The goal is to enhance patient health outcomes, especially for young adults and pregnant women, while reducing reliance on costly emergency room visits.
Key points
Enhanced Care Access: Creates multi-disciplinary care teams and ensures access to a full range of services, including specialized treatments, pain management, mental health support, and transportation to appointments.
Financial Incentive for States: The federal government will cover 100% of the costs for medically necessary SCD treatment in participating states for 42 months, encouraging states to invest in high-quality care networks.
Focus on Coordination: Requires the development of individualized, comprehensive care plans and increased reimbursement for care coordinators and community health workers to improve patient support outside of hospitals.
Expired
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