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Designating April 5, 2026, as Barth Syndrome Awareness Day

This resolution aims to raise public awareness about Barth syndrome, a rare and life-threatening genetic disorder affecting mainly males. It encourages faster diagnosis and the development of new treatments to help affected families and improve survival rates.
Key points
Supports naming April 5, 2026, as Barth Syndrome Awareness Day.
Highlights the urgent need for medical research and FDA-approved treatments.
Aims to improve early and accurate diagnosis for this multisystem disorder.
Recognizes the efforts of patient foundations in finding a cure and supporting families.
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Status: Introduced
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Additional Information
Print number: 119_HRES_1060
Sponsor: Rep. Tonko, Paul [D-NY-20]
Process start date: 2026-02-11
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Summarized by: gemini-flash-latest
Source data: api.congress.gov
AI work logs for this document launch

OFFICIAL LEGAL TITLE

Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 119_HRES_1060.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2026-02-11.

What are the main provisions?

Key points include:

  • Supports naming April 5, 2026, as Barth Syndrome Awareness Day.
  • Highlights the urgent need for medical research and FDA-approved treatments.
  • Aims to improve early and accurate diagnosis for this multisystem disorder.
  • Recognizes the efforts of patient foundations in finding a cure and supporting families.
What is the specific legal status?

The current status is Introduced.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Tonko, Paul [D-NY-20].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2026-02-12.

What is the impact of this bill?

We don't know—that is up to you to decide. Summarizing raw data with AI is fundamentally different from predicting socio-economic outcomes. As of 2026, we believe impact assessment strictly requires a human in the loop to verify and judge.

CATEGORIES

Health