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Designating November 7 as Shwachman Diamond Syndrome Awareness Day

This resolution establishes an annual day to raise awareness about a rare genetic disorder. It aims to improve public awareness, encourage support for affected individuals, and promote initiatives to enhance research into treating this disease.
Key points
Designates November 7th as Shwachman-Diamond Syndrome Awareness Day.
Increases awareness of this heritable rare genetic disorder and its impact.
Promotes further research into effective treatments for this disease.
Encourages support for individuals afflicted by SDS and promotes national, state, and local initiatives.
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Status:
Introduced
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Additional Information
Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.
Print number: HRES 1133
Sponsor: Rep. Kean, Thomas H. [R-NJ-7]
Process start date: 2026-03-24
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Summarized by: gemini-3.1-pro-preview
Source data: api.congress.gov
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Summary & Status

Key Questions about Designating November 7 as Shwachman Diamond Syndrome Awareness Day

A structured overview of the legislative process, official sources, status and civic context.

What is the official ID of this bill?

The official print number for this legislation is HRES 1133.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2026-03-24.

What are the main provisions?

Key points include:

  • Designates November 7th as Shwachman-Diamond Syndrome Awareness Day.
  • Increases awareness of this heritable rare genetic disorder and its impact.
  • Promotes further research into effective treatments for this disease.
  • Encourages support for individuals afflicted by SDS and promotes national, state, and local initiatives.

What is the specific legal status?

The current status is Introduced.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Kean, Thomas H. [R-NJ-7].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2026-04-16.

Analysis and Potential Impact of HRES 1133

We don't know, that is up to you to decide. Summarizing raw data with AI is fundamentally different from predicting socio-economic outcomes. As of 2026, we believe impact assessment strictly requires a human in the loop to verify and judge. Review our public AI processing logs for full transparency, and use Lustra to track active legislation for instant status push notifications.

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Health