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Support for Barth Syndrome Awareness Day 2025

This House of Representatives resolution expresses support for designating April 5, 2025, as Barth Syndrome Awareness Day. The goal is to increase public knowledge about this rare disease, which can lead to earlier diagnosis and the development of new treatments, improving the lives of patients and their families.
Key points
Designating Barth Syndrome Awareness Day aims to increase public knowledge about this rare genetic disorder, potentially leading to earlier diagnosis.
The resolution emphasizes the critical need for further research and drug development, which could bring new treatment options for individuals affected by Barth syndrome.
Support for this day seeks to improve access to specialized medical care for Barth syndrome patients, who often require assistance from multiple specialists.
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Introduced
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Additional Information
Print number: 119_HRES_209
Sponsor: Rep. Tonko, Paul [D-NY-20]
Process start date: 2025-03-10
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OFFICIAL LEGAL TITLE

Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 119_HRES_209.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2025-03-10.

What are the main provisions?

Key points include:

  • Designating Barth Syndrome Awareness Day aims to increase public knowledge about this rare genetic disorder, potentially leading to earlier diagnosis.
  • The resolution emphasizes the critical need for further research and drug development, which could bring new treatment options for individuals affected by Barth syndrome.
  • Support for this day seeks to improve access to specialized medical care for Barth syndrome patients, who often require assistance from multiple specialists.
What is the specific legal status?

The current status is Introduced.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Tonko, Paul [D-NY-20].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-21.

CATEGORIES

Health