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Prader-Willi Syndrome Awareness Day: Supporting Research and Education

The House of Representatives resolution supports designating May 15, 2025, as Prader-Willi Syndrome Awareness Day. This aims to increase public understanding of this rare genetic disorder and promote research, potentially improving the quality of life for affected individuals and their families.
Key points
Designating a special day will help foster a better understanding of Prader-Willi Syndrome, which causes uncontrollable appetite and developmental issues.
Support for research into the disorder may lead to new treatments and improved care, crucial for the estimated 10,000 to 20,000 individuals living with PWS in the U.S.
Promoting early diagnosis and access to support for families, which is vital for enhancing the quality of life for those affected.
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Status: Introduced
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Additional Information
Print number: 119_HRES_253
Sponsor: Rep. Tonko, Paul [D-NY-20]
Process start date: 2025-03-25
System Note: Lustra is free, publicly auditable civic infrastructure — full source code available on GitHub. You are reading sterilized legislative data, processed by our radical neutrality engine to strip political spin and retain factual mechanics. We process only official government data. Original documents remain the authoritative source—always verify them if you can.
Summarized by: gemini-2.5-flash
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 119_HRES_253.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2025-03-25.

What are the main provisions?

Key points include:

  • Designating a special day will help foster a better understanding of Prader-Willi Syndrome, which causes uncontrollable appetite and developmental issues.
  • Support for research into the disorder may lead to new treatments and improved care, crucial for the estimated 10,000 to 20,000 individuals living with PWS in the U.S.
  • Promoting early diagnosis and access to support for families, which is vital for enhancing the quality of life for those affected.
What is the specific legal status?

The current status is Introduced.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Tonko, Paul [D-NY-20].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-21.

What is the impact of this bill?

We don't know—that is up to you to decide. Summarizing raw data with AI is fundamentally different from predicting socio-economic outcomes. As of 2026, we believe impact assessment strictly requires a human in the loop to verify and judge.

CATEGORIES

Health Family