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Prader-Willi Syndrome Awareness Day: Supporting Research and Education

The House of Representatives resolution supports designating May 15, 2025, as Prader-Willi Syndrome Awareness Day. This aims to increase public understanding of this rare genetic disorder and promote research, potentially improving the quality of life for affected individuals and their families.
Key points
Designating a special day will help foster a better understanding of Prader-Willi Syndrome, which causes uncontrollable appetite and developmental issues.
Support for research into the disorder may lead to new treatments and improved care, crucial for the estimated 10,000 to 20,000 individuals living with PWS in the U.S.
Promoting early diagnosis and access to support for families, which is vital for enhancing the quality of life for those affected.
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Additional Information
Print number: 119_HRES_253
Sponsor: Rep. Tonko, Paul [D-NY-20]
Process start date: 2025-03-25