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Support for NKH Awareness Day: Increasing Knowledge of a Rare Disease

This House of Representatives resolution aims to designate May 2, 2025, as NKH Awareness Day. Its purpose is to increase knowledge about the rare genetic metabolic disorder, nonketotic hyperglycinemia (NKH), potentially leading to better diagnosis and research. For citizens, this means potentially greater support for individuals affected by rare diseases and their families.
Key points
Designation of May 2, 2025, as NKH Awareness Day to highlight a rare genetic disease.
Increased public and medical awareness of NKH may contribute to better diagnosis and research development.
Emphasis that rare diseases affect millions of people, including many children, requiring greater support and understanding.
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Introduced
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Additional Information
Print number: 119_HRES_385
Sponsor: Rep. Vindman, Eugene Simon [D-VA-7]
Process start date: 2025-05-05
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Summarized by: gemini-2.5-flash
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 119_HRES_385.

Which chamber initiated this legislation?

This legislation was initiated in the House of Representatives.

When did the legislative process begin?

The process officially started on 2025-05-05.

What are the main provisions?

Key points include:

  • Designation of May 2, 2025, as NKH Awareness Day to highlight a rare genetic disease.
  • Increased public and medical awareness of NKH may contribute to better diagnosis and research development.
  • Emphasis that rare diseases affect millions of people, including many children, requiring greater support and understanding.
What is the specific legal status?

The current status is Introduced.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Rep. Vindman, Eugene Simon [D-VA-7].

What is the latest detailed status?

The latest detailed status is: Referred to the House Committee on Energy and Commerce.

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-21.

CATEGORIES

Health