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Support for Sickle Cell Awareness Day and improved treatment access

This House Resolution supports designating June 19, 2025, as World Sickle Cell Awareness Day. The aim is to increase public knowledge about the disease, the need for research, early detection, and new treatments, while also ensuring equitable access to therapies for all societal groups. Citizens can expect greater awareness of this condition, potentially leading to better diagnosis and care.
Key points
Designation of World Sickle Cell Awareness Day to increase public knowledge about the disease and its complications.
Support for scientific research, early detection, and the development of new, effective treatments for sickle cell disease.
Efforts to ensure equitable access to innovative therapies, including gene therapies, within Medicare and Medicaid systems.
Call for the formation of an interagency government group to develop policies supporting treatment access and addressing bias against patients.
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Status:
Introduced
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Additional Information
Expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Print number: HRES 524
Sponsor: Rep. Davis, Danny K. [D-IL-7]
Process start date: 2025-06-20