Increased Support for Rare Disease Research in Minority Populations
This act aims to boost investments in research on rare diseases that disproportionately affect minority populations. Citizens can expect improved diagnosis, treatment, and care, especially within minority groups, thanks to new research programs and training for medical professionals. Access to information about these diseases will also increase.
Key points
More funding for rare disease research, especially for those affecting minorities, potentially leading to new treatments.
Improved training for doctors and nurses in diagnosing and treating rare diseases, including via telehealth.
Scholarship and loan repayment programs for medical professionals and genetic counselors working with rare disease patients.
Increased participation of minorities in rare disease research to ensure more comprehensive data.
Public awareness campaigns about rare diseases, with a focus on minority groups.
Review of barriers to rare disease treatment access for minority Medicare beneficiaries.
Introduced
Citizen Poll