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Candis King Hope for Sickle Cell Families Act: Better Data and Care

This bill establishes a national program to collect data on sickle cell disease to improve patient care and understanding of the condition. It also mandates the reinstatement of blood disorder experts at the CDC who were laid off during recent agency reorganizations.
Key points
$10 million in annual funding through 2031 for sickle cell disease data collection.
Grants for states to track patient numbers, demographics, and how they use healthcare services.
Reinstatement of specialized CDC employees in the blood disorders division who were removed after January 1, 2025.
Standardization of disease monitoring methods across the country to ensure consistent medical data.
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Status:
Introduced
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Additional Information
Candis King Hope for Sickle Cell Families Act
Print number: HR 8067
Sponsor: Rep. Vindman, Eugene Simon [D-VA-7]
Process start date: 2026-03-24