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Extending Access to Critical ALS Therapies and Research Through 2031

This bill extends funding and support for ALS research and access to experimental treatments for another five years. It aims to speed up the development of new therapies for patients with ALS and other rare brain diseases.
Key points
Extends ALS research grants and programs until 2031.
Requires drug makers to share early trial data to monitor progress.
Updates the definition of clinical trials to include more types of studies.
Mandates a new FDA action plan for rare neurodegenerative diseases.
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Status:
Introduced
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Additional Information
Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026
Print number: HR 8205
Sponsor: Rep. Quigley, Mike [D-IL-5]
Process start date: 2026-04-06