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Rare Disease Day 2025: Raising Awareness and Supporting Research

The U.S. Senate has designated February 27, 2025, as Rare Disease Day. This aims to increase public awareness of these conditions, encourage early diagnosis, and support research into new treatments. For citizens, this means a greater focus on the challenges faced by individuals with rare diseases and potentially faster access to new therapies in the future.
Key points
Designation of February 27, 2025, as Rare Disease Day in the U.S.
Emphasis on increasing awareness of rare diseases, which affect over 30 million Americans.
Encouraging early and accurate diagnosis, crucial for individuals with rare conditions.
Supporting national and global research efforts for new treatments and cures, as most rare diseases still lack approved therapies.
article Official text account_balance Process page
Adopted
Citizen Poll
No votes cast
Additional Information
Print number: 119_SRES_104
Sponsor: Sen. Barrasso, John [R-WY]
Process start date: 2025-02-27
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Summarized by: gemini-2.5-flash
Source data: api.congress.gov
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OFFICIAL LEGAL TITLE

A resolution designating February 27, 2025, as "Rare Disease Day".

FREQUENTLY ASKED QUESTIONS

What is the official ID of this bill?

The official print number for this legislation is 119_SRES_104.

Which chamber initiated this legislation?

This legislation was initiated in the Senate.

When did the legislative process begin?

The process officially started on 2025-02-27.

What are the main provisions?

Key points include:

  • Designation of February 27, 2025, as Rare Disease Day in the U.S.
  • Emphasis on increasing awareness of rare diseases, which affect over 30 million Americans.
  • Encouraging early and accurate diagnosis, crucial for individuals with rare conditions.
  • Supporting national and global research efforts for new treatments and cures, as most rare diseases still lack approved therapies.
What is the specific legal status?

The current status is Adopted.

Where can I read the full text of this legislation?

The full official text is available at: View full text

Who is the primary sponsor?

The primary sponsor is Sen. Barrasso, John [R-WY].

What is the latest detailed status?

The latest detailed status is: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)

Is this summary verified?

Yes. This content was analyzed by AI and verified by the Lustra Judge System on 2025-12-23.

CATEGORIES

Health