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Protecting Genetic Information in Bankruptcy

New rules aim to protect your genetic information if a company holding it goes bankrupt. Without your written consent, this data cannot be sold or shared. Additionally, any unused genetic information must be deleted.
Key points
Your genetic information is protected from sale or sharing in company bankruptcies unless you provide written consent.
You must receive prior written notice before your genetic information is used, sold, or leased.
Unused genetic information that was part of a company's assets must be deleted after bankruptcy proceedings.
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Introduced
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Additional Information
Print number: 119_S_1916
Sponsor: Sen. Cornyn, John [R-TX]
Process start date: 2025-05-22