Genomic Data Protection: Your Right to Control and Delete Information
This new law gives citizens more control over their genomic data. DNA testing companies must provide easy access, data deletion, and biological sample destruction. You have the right to know what happens to your data, even if the company is sold.
Key points
You have the right to easily access your genomic data held by DNA testing companies.
You can request the deletion of your account and all associated genomic data.
You have the right to request the destruction of your biological sample (e.g., saliva) provided to the company.
Companies must fulfill your request to delete data or destroy samples within 30 days.
You will be notified of the data deletion or sample destruction within 30 days of the request being fulfilled.
Companies must clearly inform you of your rights and whether your deidentified data may be used for research.
If a company is sold, you must be notified in advance and informed how to continue exercising your rights.
The Federal Trade Commission (FTC) will enforce these rules, and violations will be treated as unfair practices.
Introduced
Citizen Poll